Testing

Last week, Mom and I went to NIH to talk to a class in genetics counseling. We went in 2017, too. The teacher was my genetics counselor when I was diagnosed with Friedreich's ataxia.

I enjoy going both to talk about myself and to learn something.

This time I learned that I am a big proponent of genetic testing for FA.

I argued that I didn't think people should bring someone with FA into the world, not because people with FA aren't worth it. Let's face it, I rock, and I am proud of my awesomeness (my brother's too).

But it is beyond hard. Every day.

No one should have to deal with it.