Thursday, July 13, 2017


This is what happens when you don't worry.

You have no preparation for the crap news that Friedreich's ataxia invariably brings.

I haven't worried about my heart for years -- even less since multiple doctors said I was unlikely to develop the heart problems associated with FA at this stage.

Unlikely maybe, but not impossible as I learned this morning.

The EKG they took showed my heart racing at 163 beats per minute. I noticed it going a little faster on the way in but attributed it to nervousness and didn't worry about it. Just the opposite actually, I laughingly thought to myself that I was in the right place for a crazy heartbeat.

Now I am on a beta blocker, starting at a low dose to try to keep it from lowering my already low blood pressure.

Sure, I'd still be on it if I had worried, but at least I'd be prepared or have expected this.

As it is, it is all I can do not to crawl into bed, curl into a ball and not get up till everything is better.

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