While some of us sit around whining about various crap that Friedreich's ataxia brings, others actually do something.
I got an email this week asking me to promote on my blog the “Have a Heart — Give a Buck 4 FA Research" fundraiser. I'm doing it partly because the mom that sent the email seems to think my blog has some pull or reach.
A 16-year-old with FA started it for her birthday. She has a 30-year-old brother with FA. She sounds much more well-adjusted than I was in high school. Or now for that matter.
No comments:
Post a Comment