I went to my niece's class yesterday to talk about FA! It went OK, I guess.
It's exhausting and somewhat depressing to talk about FA. I am sitting there telling the kids that it's not like breaking your arm because you fell out of tree. With a genetic disease the only reason is you are. That is the hardest thing for me, I told them, and it weighed on me yesterday.
But whatever, it was worth it, even if the teacher was nearer in age to my almost-13-year-old niece than me. She also asked if I wanted to be called Mr. Matt, which my niece wished I had agreed on. I said Matt was fine.
My niece seemed pleased, although no one apparently told her how lucky she is to have such an awesome uncle.
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