For the first time since June 3, I am stent- and kidney stone-free and I have no more appointments related to stones.
Three weeks ago, I had surgery to break up my stones and replace the stent they put in the first day in the hospital. Two weeks ago, I had quick in-office visit to remove the replacement stent. Last week, I met with a doctor to discuss minimizing future occurrences.
It is truly a relief to put this behind me. But my Friedreich's ataxia is hitting hard and leaving me so tired and overwhelmed.
My stomach hasn’t really got back to normal yet, so I am backed up frequently. His actually is probably the result of the stones, so maybe I am not really over it.
My body temperature has become a hassle. My feet go from cold to hot and back again when I am in bed. Or one body part will be hot, another cold, a third lukewarm—all at the same time. I have enough problems sleeping. I don’t need that.
I do seem to be using the sleep machine nightly, but it remains a challenge to put on. I don’t see much benefit either.
My legs have been really restless, too.
It’s hard and unlikely to improve.
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