Sunday, February 26, 2017

This is why I was worried about my sister and PT meeting

I cough -- a lot. Air and liquid down the wrong pipe. Anything.

My point is I rarely stop what I am doing because of a cough. If I did, I'd get nothing done.  If I did, I'd get nothing done.

I know most people disagree.

My swimming teacher makes me take an extra cough after I swallow water to make sure my pipes are clear.

Yesterday at physical therapy, I was reclining in my wheelchair when I coughed moderately, nothing awful. So I continued reclining.

My PT was sitting next to me and says, "It's probably not a good idea to recline when you are coughing."

This made me laugh, which caused me to cough all the more, because as I told her, it sounded just like something my sister would say. That's why I was leery of their meeting a while back.

I did sort of lie, though. My sister would say, "It's probably not a good idea to recline when you are choking."

Saturday, February 25, 2017

Boys Night In

Mom and Dad are away at a retreat. My sister and niece are at a hockey tournament in Buffalo. This leaves my brother-in-law and nephew and me.

I needed to shower last night, but my brother-in-law had to coach a hockey game until 10.

Up to the PCA (personal care assistant) plate steps my 11-year-old nephew.

I made it to bed successfully so I got to say he hit a home run. Any issues -- like me not asking him to take my shoes off -- are on me.

I survived. And he only made one comment about my towel slipping off.

Tuesday, February 21, 2017


A little over a year ago, while up in New York getting Fame, I fell. It was the beginning of a several months-long battle with a concussion. 

Trying for a repeat over the weekend,  I fell in Mom and Dad's house and whacked my forehead on a grab-bar.

My head hurt, my neck hurt, I hurt.  But no dizziness! 

Friday, February 17, 2017

Not built for speed

I have touched on this before, I believe, but twice this week  I have been reminded how frustrating it is to be late but unable to do anything.

Both times involved me putting on boxer in the morning. The first time I spent five minutes putting them on because several times I put the wrong leg through the leg hole i started with. The second time was more boring, but the result was the same: I was late.

When I am late, there is nothing I can do. I can't kick it up a notch -- the body doesn't do that. I can't skip  something -- I am already at bare-bones, must-do tasks, like brushing teeth.

My option is lateness, which is frustrating.

Tuesday, February 14, 2017

Nothing good

My nephew would say the parking, but my physical therapist was quite surprised to hear me say "a few things are made better by Friedreich's ataxia."

Like what, she asked.

I had to explain that what I said was "few things are made better by Friedreich's ataxia," meaning nothing is. It totally sucks, to be clear.

We did have a nice little laugh.

Blog Archive