Tuesday, September 27, 2016

From the mouths of babes, even sarcastic ones

I sighed audibly Sunday night at dinner.

My sister asked what was wrong. Nothing, I said, I just had a busy day, thinking mostly of my trike ride.

My nephew chimes in: Yes, every day is busy when you're always sitting down.

I didn't hear him but knew it wasn't good because my sister was laughing  and my nephew was smiling broadly.

I went ahead and ignored the sarcasm and thanked him for understanding because he was right.

It is busy and hard.

Thursday, September 22, 2016


As if I needed a reminder that my 11-year-old nephew is his father's son, I was reminded yesterday.

I was in my manual chair because the ball bearings in my power chair had died or disappeared or what ever ball bearings do when they fail, so I called him to help me up the ramp into the house.

Sure, he said, and he came out.

What he mostly did, though, was keep me from rolling backward while shouting encouragement at me to keep pushing myself up the ramp.

It's not a bad thing he is like his dad, who does love and help me but does the same thing when he pushes me up the really steep driveway in my bike.

Monday, September 19, 2016

Things fall apart, but what?

Mom found a big screw on the floor of my bathroom over the weekend.

It doesn't look like it is from my chair.

Mom found it shortly after picking me up off the floor with the lift, and it could be from the lift. But I can't find any screws on the lift.

I thought it might be from a shelf in the bathroom, and it  does look like it's from that, except the shelf isn't missing any screws.

Mom said we'll know what it was from if something falls apart.

Saturday, September 17, 2016

Holding on

I have been sleeping poorly.

I fall asleep fine, but then wake within the hour,  my legs jumping, tired but unable to fall back asleep.

Mom blames the shorter, cooler days, and I am sure they play a part. There are other forces at play, too, and the result is I am just surviving.  

Monday, September 12, 2016


When  you feel less than awesome mentally, you see clearly how inaccessible the world is.

The elevator that closes before you can get to it every day becomes a big deal.

The button to open a door that is  hanging on by a screw becomes a significant problem.

I can deal with these on good, even OK, days, but  on days like today, I am reminded how disabled I am.

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