Thursday, November 16, 2017

Yeah, MetroAccess

I have criticized MetroAccess in the past, and the worst thing (OK, maybe not. I have been rereading about my rides) has been that every three years since I first signed up in 2005 is that I have had to go in and prove I am still disabled.

So I was ecstatic when we called this year and they said I didn't have to come in. Today, my new ID came in the mail.

Yes, it is silly that someone with a disease that is only going to worsen over tine has to reapply every three years, especially because the application features pages a doctor must fill out, but baby steps.

Tuesday, November 14, 2017

The non-dumbass way to take off a sweatshirt

"I can't believe you told me," my sister crowed. I'm kind of regretting it.

Last night, I asked for help taking off my sweatshirt. I don't know why you try to take it off in that "dumbass way," she said. I pull it over my head, and this time, got stuck.

She suggested I take my arms out first, and she encouraged me to ask my super-awesome physical therapist, who I was seeing today, how to take off a sweatshirt. "Suggested" and "encouraged" are not exactly words one should use to refer to what my sister does. Maybe if there are curse words around them.

My PT sympathized with my plight of having my sister be right (for the record, she often is and she does have to deal with me), but my PT agreed that arms first is the way to go. Her explanation: One's arms move in a lot more directions than one's head.

My PT did say one thing that made me feel better: Older sisters are always right. Take that, little sister.

Sunday, November 12, 2017

Matt the NASCAR driver

I never imagined I would compare myself to a NASCAR driver, but like a driver who crashed on turn #3 of Daytona International Speedway, I found myself graded a DNF after last week's in-home sleep study: Did not finish.

It was supposed to be easy and non-invasive. All it consisted of was a headband with a microphone, and breathing tubes that went in your nose. Pretty simple.

But it drove me crazy. I couldn't relax, and I started getting panicky and breathing deeper.

The main problem, I think, is that I couldn't watch TV or listen to music to distract me.

I had to give up.

I am trying another type this week. I can watch TV!

Sunday, November 5, 2017

I hate my feet

My feet are stupid. They get cold easily, but they also get hot. As a result, I often sleep with my feet outside the covers, a trick I first saw when John Candy did it in Cool Runnings.

This technique seemed to work until last night when I tried to go to sleep after some TV: My feet were cold.

I was unable to cover them up by using my legs, so I pulled out my newest ability: sitting up in bed. The only problem is that leaning forward is still a challenge, and this time I fell to the right, trapping my arm between the bed and my chair.

I was unable to activate Siri on my watch to call for help (I took off the case to prevent this from happening in the future), and a few times I did feel the panic rising inside me. But I wasn't in pain. So I swallowed the panic and wiggled my right arm until it was free.

I then used both ams to sit up, but I fell over to the right again. And wiggling only wedged me into my chair and hurt my back. Once again, I was starting to panic.

I thought about asking Fame to speak. I have been working on this, but I was worried that asking it of her would take pretty much all my energy, meaning if she didn't, I'd be screwed.

Instead, I managed to flop my whole body over, turn on my chair and drive it out of the way.

The path clear, I oozed onto the floor, leading with my head. I then turned over and used Siri to call my sister.

Friday, November 3, 2017

I made it!

I have not fallen in the bathroom at work in a long time.

I know that is asking for trouble, but it's true.

Anyway, I transferred to my chair today, then started sliding down off the front. My armrests were in my armpits and I was thisclose to just sliding all the way down and calling for help.

But then I thought, this is no way for the streak to end, so I started pushing myself up. I was getting there, but then I started sliding down again.

Again, I didn't want to give in, so I managed too brace one leg against the stall wall and push myself up.

I made it!

The only problem was I was exhausted by my stubbornness, I just wanted to nap.

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