I am waiting to hear back about a yearlong trial of a drug called Elamipretide that my neurologist is conducting.
It would be a treatment for cardiac and vision issues associated with Friedreich’s ataxia. If it works.
I have both, so that would be a great treatment.
Elamipretide would not be a cure.
The other trial I am interested in is a cure. It’s the next step in the trial I did a few years ago. That drug replaces the frataxin I am missing. It also is a yearlong trial.
They’re having a problem, though: non-human mammal mortalty at high dosage, I believe is how the put it. Yikes.
The trial is on hold for the moment, obviously.
The cure trial is appealing not just because it is a cure. It makes sense—giving me what I’m missing.
I don’t want the cure to kill me, though, so maybe I’ll try the treatment. If I get accepted.
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