For Christmas, the Friedreich’s Ataxia Research Alliance sent me an ornament that is hanging above my desk. Actually, it was because I sent it a donation, I suppose.
It reads, “Together, we will cure FA! FARA”
Sadly, I no longer believe in a cure, for me at least.
On one of my last walks of 2021, I thought to myself, “Wow, if someone had told me a year ago the pandemic would still be around in the United States, I’d have been pretty surprised.” But then I thought, “If someone told me after my diagnosis 25 years ago there isn’t even a treatment let alone a cure, I’d have been shocked.”
I remember talking to a genetics counselor after my diagnosis, and we decided that since my disease now had a name, they would know what to cure.
Apparently not.
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