I haven't written for a while, but unlike previous times when I could say it was hard to write, I don't have a good excuse.
I am just really tired, and with that really sad, about everything that Friedreich's ataxia saddles me with, sometimes something brand new and completely unexpected.
- The temperature regulation thing continues to be a real thorn in my side at best
- The sleep mask, even if I am used to it and able to wear it most nights, requires me to stay up too late till I am really tired so that the mask doesn't wake me up when I put it on
- My feet are bothering me even when I'm not standing for reasons I can't explain
- My wheelchair has problems that it should not have for what is supposed to be such a wonderful chair
- My eyes are not working well together
I could go on but it would make me sadder and more tired.
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